Of Course You Remember

Of Course You Remember

Of course you remember she says.
It was your sixtieth, and
we came from across the country
to express our love.

I don’t remember, I say.

But you do remember she says.
We ordered your favorite Indian foods
sang songs of the 60’s
and danced to Eleanor Rigby.

I don’t remember, I say.

But you must remember, she says.
We drank Woodford Reserve
and reminisced about motorcycle days
and drugged pleasured nights.

I don’t remember I say.

But surely you remember, she says.
we spoke of memories
some new and others old
that made you, you.

They all look at me as if
I’m playing a game
designed to torture
worse than Abu Ghraib

And with resignation I say
yes, Yes, YES!, I DO REMEMBER!!
Punctuating each word hoping
the melody hides the truth.

And finally people relax
wanting to believe
I had too much to drink
or was too lazy to think.

But I don’t remember.

I don’t remember the wonders
I’m told defined my life
and changed others
who thanked me for entering theirs.

My friends repeatedly tell me
of events whose weight,
once significant
now have shrunk to pebble-size,

Evaporating into wisps
that slip from my mind
as if they were breaths
escaping through a gossamer web

I’m told I cried
When my children were born
both times,
and I knowingly nod my head

But only remember my tears

I’m told I exchanged whispers with Martin Luther King
as citizens of Montgomery
hid in shadows
holding gray cold objects.

But I only remember the smell of night blooming jasmine.

I’m told I sent students
on livelong journeys
and taught children
who couldn’t speak to speak.

But I see only a few nameless faces.

I’m told I eased
the lives of many
with compassion
as they prepared to die.

But I only remember torn pieces of faded pictures.

All bits of yesterday
the most important
slowly descending without control
as if vacuumed from my mind,

On the way to a doorless place
I don’t know how to enter,
Or if I could, what I’d find,
Or once found what I’d do

And the repetitive painful questions
keep coming from those
desperately hoping
That the me I was is still within.

I see their fear painfully grow
as if it isn’t me they’re seeing
but a stranger they now fear.
So, with a smile I again say,

Or course I remember.

They relax comforted in believing
it was just a fleeting senior moment.
Like ones they have and laugh at
before their own doubts begin.

And I wonder how often
I’ll need to repeat this painful drama.
Smiling and nodding
because they don’t understand that

I can’t remember.

25 comments

  1. Kathlee

    Wow, so powerful.

  2. Stan,
    Thanks for the additional features to your website! You are an AMAZING soul and I look forward to reading more. . .♥

    All the best to you my friend,

    Paula

  3. Stan,
    I have done what’s called Slam Poetry for 5 years — I made the Nebraska National Team to compete at nationals in August — and nothing I have ever written in all this time compares to your poem. It reminds me how lucky I am that I can stil remember you.
    Steve

  4. Beautiful writing, Stan. Isn’t it sad how our fears often blind us to the truth.
    XOXO,
    Pat

    • Hi Pat,

      Thanks for the kind words. You’re absolutely write about fearing those things that often are our keys to becoming more whole.

      take care,
      Stan

  5. Beautiful, Stan ~ just beautiful. You have such a gift for writing ♥

  6. Caroline

    Stan,
    Your poem is heartbreaking and beautiful.
    Do you have any memory of a Carol Cole?

    • Thanks for your kind words. The name Carol Cole doesn’t jog any memories. Are you Carol? If so I apologize. Tell me more.

      Take Care,
      Stan

  7. Your poem has touched my heart. As I read this I could see the far away look in my mama’s eyes. I can remember the struggle to “cover up” and her bright smile as she made an acceptable ‘excuse’ as to why that didn’t sound familiar. I now work for the Alzheimer’s Association as an Early Stage Care Consultant and Educator. With your permission, I would like to share your poem with others. Blessings to you and yours.

    • Hi Janie,
      Thank you for your kind words. Please feel free to share the poem with others. The responses from people who don’t understand dementia to my article It’s Alzheimer’s not the bloody plague, has been gratifying. It’s more a case of people being afraid of what they don’t know rather than being insensitive

  8. Very touching. Touches so much of our humanity and our fears.

  9. Tears ran down my eyes as I read this beautiful poem. Truly,you are very gifted. Thank you again for sharing this and your website.

    • Thank you Helen for your kind words. I’m finding it easier to put into a poetic or fiction format some things that people have difficulty with as a nonfiction essay.

  10. I am a full time caregiver of my mom who has alzheimers disease.I was directed to your site by one of the members (Angels)of an on line support group I belong to. I just want you to know how inspirational your writing is to those of us that are caregivers,or anyone really that is going through a difficult time in their life. Keep up the good work, and I thank you for sharing.

  11. Hi Stan. I really appreciate this articulate and evocative poem. My sister recently received a diagnosis of Alzheimers, and I have been looking for information from the patient’s perspective. Sadly, there doesn’t seem to be as much of that as from the outside looking in.

    I have a question. I can see the person with Alzheimers might find it hard to respond to the question “Don’t you remember?” so what would they rather hear? How do I talk to my sister without emphasizing her weaknesses?

    • Hi NM,

      Unfortunately there isn’t an answer that works for all people with Alzheimers. And I think maybe that’s the problem with many of the books. But there are some guidelines that do apply across the board that might help.

      Most people are aware that loved ones with Alzheimers have memory problems, both short and long term that increase as the disease progresses. But many don’t understand the role “structure” serves. Generally, we make sense of our world because we have an internal sense of structure (e.g., rules of social interaction, expressions of emotion, making sense of our physical surroundings, etc.) What I’ve seen is that those internal structures also breakdown with people with Alz. I think it has a lot to do with the fact that one of the first things to go with declining cognition is using and understanding abstractions. And that’s what all of these rules have in common: they’re unwritten rules that allow us to make sense on our world.

      IN my new book I spend a chapter explaining how cognition effects those with various forms of dementia and what loved ones can do to help. Generally, it’s a good idea to make things as concrete as possible. A simple example is to create a “family board” where pictures of family members with their names printed underneath are grouped together. Simple ways that can make structure external help greatly. It’s important to make structures external even before someone needs it. It becomes easier to use when they do and can temporarily prevent the confusion the loss causes.

      As for “Do you remember..” questions. They’re rarely helpful. If there is something you want your mother to remember, describe the event that she participated in. If she remembers, it may come back. If she doesn’t, she won’t feel that she’s being asked to do something she’s incapable of doing. Don’t put the event in the form of a question. It’s better to use just a description within a conversation you’re having with her. You might also want to look at some of the articles on my website that deal specifically with chronic and terminal illness issues. Hope this helps.

  12. I have both Early Onset Alzheimers and Frontal Temporal Degradation/dementia. I am able to write because of the slow speed and ability to choose and then erase words. I’m in the nasty middle stage (to those who prefer, just entered stage 6)I also am a chronic pain sufferer which is what led me to you. This is an incredible poem. There is a site on Facebook called Memory Peoplewhich is a private site for people who have different dementias, their caretakers and people involved in advocatcy. I would love to share this poem with them. It describes me, it descibes my friends. And thank you for being you. Hugs, Debbi

    • Thanks for your kind words Debbi. I’m also on Memory People and refer Rick and to the site in my book on caregiving. And when Dallas was still able, we exchanged emails on what she was going through. Please feel free to share the poem.

      Take Care,
      Stan

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